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Executive Director - Lipedema

Lipedema Foundation, Greenwich, Connecticut

Position Description:

The new Executive Director will be an entrepreneurial and driven professional who will serve as a strategist, champion, and leader for the Lipedema Foundation (“LF”). The Executive Director will partner closely with the Founder/Current Executive Director, the Chief Science Officer, and the broader team to design and execute LF’s strategy and plan. This is an exciting moment to be a part of something truly unique in women’s health and to guide the Foundation in  ensuring  collective awareness, accessible diagnostic tools, and available patient treatments for lipedema.

More specifically, the Executive Director is charged with the following key responsibilities:
  • Develop and execute a strategic plan in conjunction with the Founder, Chief Science Officer, and team with a focus on scientific/medical research, grant-making, awareness, and organizational and systems growth.
  • Prioritize and balance gaps and opportunities; lay the groundwork for complex, future large- scale research projects and key operational and organizational projects that serve the mission.
  • Significantly grow awareness around lipedema among multiple stakeholder groups including researchers, surgeons, doctors, therapists, and the general public.
  • Serve as one of the thought leaders, public faces, and ambassadors for the Foundation to the public and partners via conferences, retreats, webinars, and other opportunities.
  • Lead a small team of professionals and partner closely with the Founder in a culture that promotes a high level of collaboration, mutual respect, humility, and excellence.
  • Build a network of collaborative scientific investigators, clinicians, and educators to extend the Foundation’s reach as well as work to formalize LF’s Advisory Board and its governance.


LF seeks a strategic leader with superior communication, team management, and relationship building skills. The new Executive Director will have a systematic approach to developing and driving robust strategies and plans and a deep interest in and passion for women’s health.

Key Experiences and Attributes Include:
  • An energetic leader with a minimum of 10 years of leadership experience from disease- focused foundations, non-profits, start-ups, or corporate sector; an understanding of collaborative grants and associated processes required.
  • A critical thinker, able to create a vision, develop a plan, marshal resources, and execute on objectives utilizing a proactive and entrepreneurial mindset.
  • Open, inclusive, adaptable, and motivating with experience managing an efficient and collaborative team.
  • Experience creating and implementing top-notch systems, operations, processes, and programs as well as an understanding of boards and governance.
  • Eloquent and poised to serve as an ambassador as well as distill complex scientific information into clear and compelling messages.
  • Personable, humble yet confident, and a natural relationship builder able to seamlessly transition between scientists, patients, and physicians.
  • Organized in both the breadth of the big picture and executing the depth of the small details with the self-directed drive to ensure accountability and success.
  • Innately motivated by the mission and goals of LF and excited to be a continuous learner around lipedema.
Bachelor’s degree required. MBA, MPH or MS preferred. PhD a plus.
Approximately 25% travel; ability to work one day a week from home or Manhattan.
Salary and benefits are competitive and commensurate with experience.

To Apply:

Please email cover letter and resume or nominations in confidence to:


This post will be available until September 19, 2020 or until filled.

LF is an Equal Opportunity Employer and encourages candidates of all backgrounds to apply.

The NIH is dedicated to building a diverse community in its training and employment programs.